Ethan’s silence raises £1,626

Date: 10/03/12. Lennoxtown, Picture of 8 year old Ethan Kennedy who is doing a sponsered silence for baby MArk with rare genetic condition. L-R: Christine Chaudhuri, Ethan & Rebecca Chaudhuri.
Date: 10/03/12. Lennoxtown, Picture of 8 year old Ethan Kennedy who is doing a sponsered silence for baby MArk with rare genetic condition. L-R: Christine Chaudhuri, Ethan & Rebecca Chaudhuri.

TALKATIVE Ethan Kennedy has raised £1,626 for a charity which helps sick babies by not uttering one SINGLE word for 15 hours on Saturday.

The pupil of Baljaffray Primary in Bearsden wanted to do something to help friends of his family who have a baby born with a rare condition.

The couple both carried a gene which means that their son, Mark, has spinal muscular atrophy, commonly known as ‘floppy baby syndrome’. He was diagnosed at seven months and quickly became very ill, requiring to be fed with a tube and put on a drip - often babies with this disease don’t survive past infancy.

Ethan (8) zipped his lips from 7am to 10pm at home with his mum, Rebecca, with her best friend as adjudicator. All the money he’s raised will go to the Jennifer Trust which offers free information, emotional support and practical advice to anyone affected by spinal muscular atrophy in the UK.

The caring young boy has also put his name to a letter to the Queen, the Prime Minister and Health Secretary Nicola Sturgeon asking for genetic testing to be made law.

Spinal Muscular Atrophy (SMA) is an inherited neuromuscular condition that specifically affects nerve cells in the spinal cord - the lower motor neurons.

Approximately one in 6,500 babies born have the condition which means that about 100 new cases are diagnosed each year in the UK.

Ethan would like to thank everyone who has donated cash to him, including all the local businesses.

OH SO QUIET . . . Ethan with his mum Rebecca Chaudhuri and grandmother Christine Chaudhuri. (Ref: M20343a)